Results

Results, they aren't what we expected...they are a little better. The myeloma in Scott's bone marrow has an overall percentage: 7%. That isn't too shabby. He went from 15% after the first transplant to 7%, The doc is happy with that. One number had to be 50% lower from the start and another number had to be another percentage in order for the Myeloma to be in complete remission. Scott is still in a partial remission. We will take it! We had to fill out forms and take forms home to fill out for the medication that they call "therapy." It is so brand new that we cannot even go to a pharmacy to pick it up. The drug company releases it to certain mail away pharmacies and they overnight it to the patient. We have to fill out a form to apply for assistance with out copays. It is renewed at the beginning of the year, January. It runs, if you are approved for assistance, for one calendar year, according to their funding and what is left in the fund. The woman at the doc's who handles this end of it is certain that we will get approved, she says that almost no one gets denied for assistance, some kind of assistance. It is through a privately run fund, that entrepeneurs and drug companies contribute to, for people with chronic, diseases. So that is where we are at. Basically in the same place, but happy to know that the partial remission is a stable place to be. Hopefully, stable means a long while. I seriously know that it isn't acceptable to Scott that it not be. He is a fighter, he is stubborn. I know that for the past year and a half these things have worked in his favor. I just want to have them work in his favor a lot longer.
THis week, so far has been tough. I really was worried that his results weren't going to be much better than they were. I am very happy that they are. I just worry a lot about him every day. I am so tired of worry. It scares me too much. It makes me cry. It makes me angry. It infuriates me so much. My wish is to have a day where I won't worry, where I won't cry, where I won't be angry. I know that Scott has these feelings too. He is so very angry that this has happened to him. He is so very angry that his kids must see him go through this. That his children must live with the knowledge that their dad has cancer. He feels powerless sometimes, but won't admit it, I see it in his eyes. I worry about that too.
Now I must close for today, I have children to fight with about breakfast. We have a stubborn 11 year old who won't eat anything but some nasty cereal that we are all out of, foodshopping is today. So the lovely boy is now sulking and eating a piece of fruit for breakfast. He refuses to understand that sometimes, just sometimes, you need to deal with the fact that your parents are dealing with other issues and that foodshopping for nasty cereal wasn't a priority until today! I mean, he isn't 2, he is 11, am I right? Adapting is a part of life? If it isn't there, you try something else? KILL ME NOW!