Hi, let's get the news out of the way first. Scott visited(me too) an ortho oncologist last thursday. We traveled into Manhattan, to NYU Medical Center. His name was Dr. Wittig. His results were better, but he needs to wear a brace. A full leg brace. He was fitted on Friday, and we picked it up on Monday. Monday wasn't good, and neither was Tuesday. He was angry, upset and very verbal about it. He was going to throw the thing out etc. but not in nice tones. Today he went to the oncologist. (follow up) and he was pleased with our talk with the ortho in Manhattan. He was also pleased with the brace. Scott is tolerating the wearing a little better, and still curses a litttle, but not as loudly and not directed at me. Basically, he will need a hip replacement, but between the end of treatment and the stem cell transplant.
Today's visit was very encouraging, the calcium and the protein levels have started to come down, the last blood work was last Friday, before today. The proteins were comming down from the bloodwork before that(10 days prior) so that is a good bit of news.
I talked to my sister Margaret yesterday, she was her funny cynical self, but there was something missing. I was crying with her on the phone, I felt horrible that I couldn't be there for her, and I think that it came out in my tears. I heard her pain, and couldn't even sit and hold her hand. I could feel that she was devastated, but could do nothing about it. My sister Tc came home today, they drove up and stayed until this morning. She suggested that I call Margaret, but I thought I would wait and allow her to have some time with her family. She was at Rychelle's house, they were probably haveing dinner together, so I waited until just as it was getting dark here, probably got dark there, and called her house. Everyone knows that Marge doesn't drive in the dark, so why wasn't she home? That was a sick attempt at a joke, but I get it, she doesn't want to go home, to the empty house.
Stuff: School starts next week, and I can't wait. The boys will be going back and that will be a blessing. They need the structure! Goodness knows, I need the time away from them! They are great kids, but they really are finished with each other and with summer. They don't want to admit it, but it is the truth. Cassidy has another year before I have to let her go. That will be hard, she will be ready, but it still will be hard. Maybe when Scott gets better, we can afford to send her to pre school, it did the boys a world of good, and it would do her a world of good. A half year is better than nothing.
My in laws have been great through this, very supportive, very concerned, and trying to keep everyone up on Scott's treatments, in the family. They call every day, they drop by, and try to let him know that they want him to listen to the doctor. His uncle Buzz has been great too, calling just when it is needed, and dishing out his "uncle Buzz" logic, which Scott understands and listens to. His Aunt Gail has been great too, sending me funny emails, and just letting me know that she is here(ther ) for us!
Ending for tonite, keep up the thoughts and prayers, they seem to be working!
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2 comments:
....thinking of you....
how are you and dh holding up?
{{{hugs}}}
Hi Cathy, we are doing ok, I am a llittle stressed, Thank GOD that I learned how to put on braces and shoes over them! Otherwise we would be a little more troubled. Scott started chemo again on Tues, he is tolerating treatment well! He goes again this morning(friday)and this is the once a month long one that put him to sleep two days later, last time. BUT and that is the key thing, BUT, if that is all that happens, sleep, that is a good thing. I appreciate that you are thinking of us, it means a lot.
Keep those thoughts and prayers going! we are seeing the positive results!
Love,
M
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